11 – 16 juli – isolation days part 1 – immune system going down

11 – 16 juli – isolation days part 1 – immune system going down

Na mijn stamcelverjaardag begint de isolatie, D+1 t/m D+6. Het is de bedoeling dat in de eerste periode van isolatie je immuunsysteem afneemt (leukocyten) richting 0. Verder houden ze dagelijks je hemoglobine, bloedplaatjes, bloeddruk en temperatuur in de gaten. If any other business, dat ook, dat moet je dan even aangeven.

Zonder rare bijkomstigheden, doet mijn immuunsysteem wat het moet doen, zakken dus, de artsen zijn er uiterst tevreden over. Geen gekke bijwerkingen, beetje moe misschien, maar dat was niet nieuw. Geen misselijkheid, obstipatie, temperatuuruitschieters, hoge bloeddruk (eerder laag, maar niet zorgwekkend) enz.

In isolatie krijg je dagelijks een soort samoerai dwangbuispakje aangemeten. Wassen gaat met 2 flessen body- en private wash, douchen mag niet meer. Je krijgt mondspoelmiddel voor je gebit. Hiermee willen ze voorkomen dat er open wondjes ontstaan, als je immuunsysteem plat ligt kunnen daar risico’s aan vast zitten. Als je voorzichtig bent mag je je tanden nog wel met een babytandenborstel poetsen. Gelukkig heb ik een stevig gebit en heb ik zo’n tandenborstel mee, dus dat doe ik. Het meest vervelende (maar noodzakelijk) vind ik nog steeds het urinekatheter, hoe vaak ik daar ruzie mee heb gehad is niet meer op 2 handen te tellen 🤨

Vele vinden de isolatieperiode rustgevend, relaxing en nog meer van die mooie woorden. Dat geldt helaas niet voor mij. Ik ben niet erg spiritueel aangelegd, voel me best prima, en verveel me een beetje. Maar daar kom ik wel weer overheen hoor 😉 Dus ik vermaak me met een (heel klein) beetje werk, blog, facebook, messenger en ik binge watch the crap out of Netflix. Je wordt er wel een beetje lui van moet ik zeggen 🤔😂

After my stem cell birthday the isolation starts, D+1 to D+6. The intention is that in the first period of isolation your immune system decreases (leukocytes) towards 0. Furthermore, they monitor your hemoglobin, platelets, blood pressure and temperature daily. If any other business, that will be monitored too, you have to indicate that.

Without strange side effects, my immune system does what it should do, so the doctors are extremely satisfied with it. No crazy side effects, maybe a little tired, but that’s nothing new. No nausea, constipation, temperature outliers, high blood pressure (rather low but not worrying) etc.

In isolation you get a kind of samurai straitjacket suit every day. Washing is done with 2 bottles of body wash and private wash, no more showers. You get mouthwash for your mouth. With this they want to prevent open wounds from arising, if your immune system is flat, there may be risks attached to it. If you are careful, you can still brush your teeth with a baby toothbrush. Fortunately I have strong teeth and I have a toothbrush with me, so I do. The most annoying (but necessary) I still think is the urinary catheter, how often I have had a fight with it can no longer be counted on 2 hands 🤨

Many find the isolation period soothing, relaxing and more of those beautiful words. Unfortunately that does not apply to me. I am not a very spiritual person, I feel fine, and I am a bit bored. But I will get over that again 😉 So I enjoy myself with a (very small) bit of work, blog, facebook, messenger and I binge watch the crap out of Netflix. It makes you a bit lazy, I have to say 😂

Hematopoietic Stem Cell Transplantation (Day 0 – 10 July 2019) – part 1

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